WP 1.3 - Quality of Life in Danish families with peanut/egg/hazelnut allergy.

Background:

Food is vital, basic and fundamental to life. Normally you need not be afraid of what you eat, but this is not the case for children and adolescents with food allergy. Food allergy is unusual in that the child/adolescent has a chronic condition but remains well with the potential to contract severe acute illness. Their everyday life implies the risk of anaphylactic shock every time they have something to eat. Food allergy is known to impact the Quality of Life (QoL) of the child/adolescent but also affects the family members. Stress and anxiety are described in families living with the risk of anaphylaxis.

Hypothesis:

  • A life with food allergy influences QoL of the patient, the parents and  siblings
  • Peanut Allergy affect Qol more than egg and hazelnut allergy
  • Adolescents with peanut allergy constitute a heterogeneous group and differ in coping strategies compared to children and adults
  • There is a gender and age-related difference in risk management of anaphylactic chock
  • Clinical Threshold to the food (sensitivity) and number of ER visits are important cofactors for QoL

Methods:

A quantitative study using validated Food Allergy Quality of Life Questionnaires Child-, Teenage-, Adult- and Parent Form. The cohort will comprise of an existing database with 600 Danish children and adolescents (0-21 years) diagnosed with peanut/Egg/hazelnut allergy according to EAACI guidelines. Data will be collected over a year when the patients come to their planned check-ups in the Allergy Centre. The Questionnaires will be web-based for the parents and siblings who do not participate in the consultations. Focus will also be on a possible relation between QoL and the clinical sensitivity of the patient (threshold, i.e. the amount of peanut protein ingested eliciting a clinical reaction). Furthermore, a possible impact of the number of experienced episodes requiring treatment in the Emergency Room will be investigated. Baseline information will be collected; gender, age, school, number of siblings, age when diagnosed, education of parents etc.

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