WP 1.4 - Communication tool for disclosing risky situations in life when you have peanut allergy.

Background:

Children /adolescents with food allergy have different views on their allergy and different ways to handle it that evolve in response to age, gender, and context-specific stressors. Research shows that clinicians and other health professionals need to address the burden more effectively than they do at present to ensure a more positive future outcome for these children. Parents, siblings and friends are key players in the children/adolescents’ social network, and consequently, they will be included in this study. Adolescents are at high risk of food allergy-induced fatalities and opportunities to engage in risky behavior increase as children enter their teens. It can be caused by risk-taking behavior resulting in reduced vigilance regarding the food they eat and reluctance to carry the rescue medication. Therefore it is vital to understand the basis of illness beliefs, cognitions and emotions in order to develop targeted intervention, using communication methods that are meaningful to the individual. A communication tool for disclosing risky situations in life is new in research of food allergy and there is no research prior to this study that includes friends. Colours such as green, yellow and red are the basis for the tool.

Hypothesis:

  • Children, adolescent, friends, siblings, mothers and fathers do not define safe and risky zones similarly
  • The zones will correspond to Qol score
  • If parents are divorced there will be larger discrepancies about the zones in the family. Patients and caretakers define risky zones differently

 

Methods:

In this project we use the colours to indicate risk levels of different zones, e.g. home, school, holiday etc: 

Green - a risk-free zone – I feel safe, Yellow - I have to be aware of potential risks, Red - I have to be alert – everything is risky. The tool will be tested on families with peanut allergy from WP 1.3 and also two of the adolescents’ best friends.

For children, adolescent, adult (6-21 years): How risky is your everyday life (green/yellow/red zones) with peanut allergy? The participants will be asking to estimate (1) how much time is spent in the area (e.g. school whether in either; green, yellow, red) (2) how important this is to them. 

For parents, siblings, two best friends (only adolescent): define green/Yellow/red zones for your child, sibling, Friend). For caretakers: define green/Yellow/red zones for your patient.

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